PCE

Care Coordination in Spinal Muscular Atrophy

Episode Summary

Dr. Vanessa Battista and Dr. Julie Parsons discuss multidisciplinary coordination of care in patients with spinal muscular atrophy (SMA).

Episode Notes

In this episode, Dr. Battista and Dr. Parsons discuss the importance of care guidelines and the multidisciplinary team in the treatment of spinal muscular atrophy (SMA). This overview will include:

• The role each member of the interdisciplinary team plays in the care of SMA including physical therapists, occupational therapists, and speech therapists
• The importance of continued, ongoing therapy in addition to medication therapy to provide the greatest improvement in SMA care
• How to manage transitions in care, including the transition from pediatrics to adulthood and how to include the necessary support teams
• The role shared decision-making plays in the treatment of patients with SMA

Presenters:

Julie Parsons, MD
Co-Director, Neuromuscular Clinic
Haberfeld Family Endowed Chair in Pediatric Neuromuscular Disorders
Professor of Clinical Pediatrics and Neurology
Children’s Hospital Colorado
Denver, Colorado

Vanessa Battista, DNP, MBA, RN, MS, CPNP-PC, CHPPN, FPCN
Senior Director of Nursing, Palliative Care
Psychosocial Oncology and Palliative Care
Dana-Farber Cancer Institute
Boston, Massachusetts

Supported by an educational grant from Biogen.

Link to full program: 
https://bit.ly/43Dmo7q

Link to CME: Claim credit
https://bit.ly/40gulfX